Archive for February, 2007

Relationships

There are many types of relationships. There are physical and non-physical relationships. There are relationships with friends, family, employers and co-workers. There are even some people that have relationships with their neighbors. I do not have one with my neighbors because I choose not to have one at this time. We all have good and bad relationships.

There are also many styles of relationships. What works best for one person, may not work for another person. The key characteristics which define all successful relationships happen to be respect, encouragement, affirmation, appreciation, forgiveness, shared moments, love, understanding, listening, faithfulness, compromising, endurance and perspective. I am sure there are other characteristics I have missed, however, please remember the main one……respect.

Relationships and respect work both ways. If you want to have friends, you have got be to friendly. If you want to be loved and respected, you must love and respect others. As a person, I strive to be respectable, lovable and always have integrity. I pray that I have displayed this character.

I pray and hope that this post has helped someone today.

Fibro Viv


Lifestyle Adjustments and Self Monitoring

When I was working as a project manager for an IT company, I had one Director talk to me about balance. Balancing our lives. Which meant trying to balance your time and setting your priorities. Work is not everything. Yes, we have that responsibility of having to work in order to provide for our family. However, we should always keep in check and balance every aspect of our lives. Home, work, community, etc.

When you have been afflicted by Fibromyalgia and Chronic Fatigue it forces you to make those adjustments in our lives. We have to learn to live well with this disease and change or adjust in a way that we can improve our quality of life. The past is the past. Now lets think about the present and the future. Here are some critical adjustments we need to address:

Start Planning and Setting Goals

Setting Priorities
Manage your plan
Learn what is important in your life
Rest and save your energy for your #1 priority
Pace
Sleep Well
Eat Well
Make an effort to move/exercise
Pick your battles
Plan on accomplishing a task or activity you enjoy
Schedule appointments with your PCP and Pain Management Doctor

I have found that I have had to simplify my life. I was forced to quit working, and mourned that part of my life for a long time. I tried to understand why I missed the deadlines, stress and work in general. I realized that what I missed was the people. My family is important to me, but work was also important and I enjoyed it. I may have lost my job, but I did not loose who I was or who I am. It is difficult to come to that conclusion immediately. I hope that anyone that has experienced what I have will also learn to understand the different aspects of our lives. Sometimes we need to talk to someone about how we feel or write it down to help us sort out these feelings.

Here is thought for you: It’s time to let your life be like the current of a river, and just go with the flow. Just don’t forget to adjust your lifestyle and monitor your progress.

Please share your point of view or experience.

I hope and pray that is post has helped someone today. Have a pain free day.

Fibro Viv


Experiencing Increased Amount of Pain

Hello Everyone,

I am sorry to report that I have been experiencing an increased amount of pain. Cooler weather and I do not mix well:( My pain seems to flare-up more when it gets cooler. Thank goodness for the creation of the microwave heat-pack that helps those aches and pains! If you do not own one, please consider buying one for yourself. You can find the microwave heat-packs at home and medical supply retail stores.

Have you ever told yourself the following:

* I am in too much pain, so I’ll skip doing light activity or exercising,
* It is too cold, too hot, too wet, too much trouble to try anything,
* I do not have time,
* I am having no pain, so why add to it,
* Any excuse not too move.

Come on, admit it….well, guess what….we all do it. If you suffer from both fibromyalgia and chronic fatigue the tendency is to not exercise. Physical activity is important for all of us. There are benefits to physical activity and exercise. Moderate exercise can improve general health and fitness. Believe it or not, moderate exercise can decrease tender-point pain, increase fitness and decrease fatigue in patients with FMS. However, patients like myself also have to learn how to “pace” and not over do it or remind ourselves that we have to move! Finding the right type, amount, intensity, and schedule of exercise is important to achieve the maximum benefit of any exercise program. If we do not exercise, the body begins a de-conditioning cycle. Fatigue, muscle weakness, as well as stiffness and increased pain are all part of that cycle. While it is painful for me to move around, I find that as I stretch and move I feel better. When I am experiencing a flare-up, it is difficult to keep myself motivated. This is one reason I have committed to keeping up this blog. To keep me motivated. Believe or not, helping others, motivates me.

Assess your current activity level, consider the times of the day when you have more energy, and avoid strenuous exercise during periods of fatigue or high temperature. My excuse is cold weather. I am working on improving or changing my current excuse for not moving or exercising.

Remember that too much or the wrong kind of exercise may actually intensify the symptoms of fibromyalgia and cause muscle fatigue and damage. It is important to include warm-up, strength and endurance, and cool-down exercises. If you cannot exercise, just stretch.

So here are some keys to success:

* Start slow
* Be consistent
* Set achievable goals
* MODERATION and/or PACING!

WRITE DOWN THESE ENERGIZING CONSIDERATIONS

1. Some movement or physical activities that I frequently accomplish are? (fill in the blanks)

_____________________________________________________

_____________________________________________________

2. Some type of movement or exercise I would enjoy doing?

_____________________________________________________

_____________________________________________________

3. What is preventing me from accomplishing these activities?

_____________________________________________________

_____________________________________________________

4. What can I do to keep me on track?

_____________________________________________________

_____________________________________________________

5. Who can I enlist to motivate me or what can I read to remind me? (Maybe reading my post?)

_____________________________________________________

_____________________________________________________

When you first wake up in the morning, try stretching while still in bed. Move slowly and remind yourself that it will help you. Make sure you eat breakfast, what you eat is going to be your fuel, so eat healthy. I was told that every hour you exercise, you add an hour to your life. When you start moving, if your muscles hurt, it is because you do not have enough oxygen in your system. Breathe…breathe….breathe deeply, inhale, exhale, etc.

I hope and pray that this post has helped someone today. Have a pain free day.

Fibro Viv


Information I received on Free Prescription Medications

This is something that was passed on to me from another FMS patient who was generous enough to share information on prescription medications free of charge.

I found a few months back I don’t know if these Companies are still around or not but thought I would pass this info on. (thanks to the unknown author of this information)

The research-based pharmaceutical industry has had a long standing tradition of providing prescription medications free of charge to physicians whose patients might not otherwise have access to necessary medications.

The list below contains the name and telephone numbers of companies that have indigent programs in place.

Company Program Name Products Covered For More Information Call
Alza Pharmaceuticals Indigent Patient Assistance Program Testoderm
Ocusert
Progestasert (415) 962-4297
Amgen Safety Net Epogen
Neupogen (800) 272-9376 or
(202) 637-6698
Astra Merck Inc. Patient Assistance Program Plendil
Prilosec
Tonocard (800) 236-9925
Astra USA, Inc. F.A.I.R. Program Foscavir (800) 488-3247
Bayer - Pharmaceutical Bayer Indigent Patient Program Most Bayer Prescription Products (800) 998-9180
Boehringer Ingelheim Partner in Health Alupent
Atrovent
Catapres-TTS
Mexitil
Serentil (800) 556-8317
Bristol-Myers Squibb Patient Assistance Program Many Bristol-Meyers Squibb Pharmaceutical Products (800) 736-0003
Ciba Pharmaceuticals Patient Support Program Many Ciba Products (800) 257-3273
Dupont Merck Pharmaceutical Company Patient Assistance Program All non-controlled Prescription Products (800) 474-2762
Fisions Pharmaceuticals Indigent Access Program Intal
Tilade (610) 454-8110
Fujisawa USA, Inc Indigent Patient Program NebuPent (847) 317-8874 or
(847) 317-8617
Genentech, Inc. Uninsured Patient Assistance Program Actmmune
Actvase
Protropin
Nutropin (800)879-4747
Gilead Sciences, Inc. Gilead Sciences Support Services Vistide (800) 445-3235
Glaxo Wellcome, Inc. Patient Assistance Program All Glaxo Wellcome Prescription Products (800) 722-9294
Hoechst Marion Roussel, Inc. Indigent Patient Program All prescription products except, Rifadin, Rifamate, Rifater and Tenuate (800) 221-4025
Janssen Pharmaceutica Patient Assistance Program All Jansen’s prescription products (800) 544-2987
Knoll Pharmaceutical Company Indigent Patient Program Isoptin
Rhyhmol
Collagenase Santyl
Synthroid Write to:
Knoll Indigent Patient Program
Knoll Pharmaceutical Company
3000 Contenental Drive, North
Mount Olive, NJ 07828-1234
Att: Telemarketing
Lederile Laboratories Partners in Patient Care, Assistance Program Most Prescription Drugs (703) 706-5933
Eli Lilly and Company Lilly Cares Most Lilly prescription products (800) 545-6962
for Gemzar call
(888) 443-6927
The Liposome Company Financial Asststance Program for Abelect Abelcet (800) 335-5467
McNeil Pharmaceutical Patient Assistance Program All prescription products (800) 281-5192
Merck Human Health Patient Assistance Program Most Merck products (800) 994-2111
for Crixivan call
(800) 850-3430
Ortho-Biotech Inc. Financial Assistance Program Procrit
Leustatin (800) 553-3851
Ortho Pharmaceutical Corp. Patient Assistance Program All prescription products (800) 281-5192
Parke-Davis Patient Assistance Program Accupril
Cognex
Dilantin
Loestrin
Neurontin
Zarontin (908) 725-1247
Pasteur Merieux Connaught Indigent Patient Program Imovax
Imogam
TheraCys (800) 822-2463
Pfizer Inc. Pfizer Prescription Assistance Most Pfizer products (800) 646-4455
for Diflucan and Zitromax call
(800) 868-9979
For certain Pfizer single-source products call
Sharing the Care
(800) 984-1500
In Arkansas call
The Arkansas Heath Care Access Foundation at
(800) 9508233 or (501) 221-3033
In Kentucky call
Kentucky Health Care Access Foundation at
(800) 633-8100 or
(502) 244-4214
In S. Corolina call
Commun-I-Care at
(800) 7630059 or
(803) 779-4875
Pharmacia and Upjohn Prescription Medication Assistance Program Most prescription products For Self-Administered products call
(800) 242-7014
For Non Self-Administered products call (800) 366-5570
Procter and Gamble Pharmaceuticals Inc. Patient Assistance Program Asacol
Dantrium
Didronel
Macrodantin
Macrobid (800) 448-4878
Rhone-Pouleng Rorer, Inc. Indigent Access Program Most prescription products (610) 454-811-
Roche Laboratories Roche Medical Needs Program Most Roche and former Syntex product line (800) 285-4484
Roxane Laboratories, Inc Patient Assistance Program Marinol
Oramorph
Roxanol
Roxicodone
Viramune (800) 274-8651
Sandoz Pharmaceuticals Corp. Patient Assistance Program Clozaril
Neoral
Sanimmune
Sandoglobulin
Sandostatin
Parodel (800) 999-6673
Sanofi Winthrop Pharmaceuticals Needy Patient Program Most of their product line (800) 446-6267
Schering Labs / Key Pharmaceuticals Commitment to Care Most Schering/Key prescription drugs (800) 656-9485
Searle Patients in Need Many of the prescription drugs (800) 542-2526
Serono Laboratories, Inc. Helping Hand Program Metrodin
Fertinex
Serostim (617) 982-9000
SmithKline Beecham Pharmaceuticals Access to Care Program Most of their product line (800) 546-0420
for Oncology products call (800) 699-3806
Solvay Pharmaceuticals, Inc. Patient Assistance Program Most of their product line (800) 788-9277
3M Pharmaceuticals Ingigent Patient Pharmaceutical Program Most drug products (800) 328-0255
Wyeth-Ayerst Laboratories Norplant Foundation Norplant (703) 706-5933
Zeneca Pharmaceuticals Patient Assistance Program Most of their product line (800) 424-3727

I understand the financial impact on people who have lost their jobs, or have little to no income to cover prescription medications. I do not know if all of these are still available. Many patients have to try different medication combinations before they can find the one that helps.

NOTE:  Please talk to your doctor about medications and get educated.  Research on-line and ask your Pharmacist.  

I hope and pray that this information has helped someone today.

Fibro Viv

Where else to go for information and support

The Internet is a great tool for conducting research and gathering information about your illness.  A search from any one of the many Internet search engines will lead you to a number of organizations that represent the needs and concerns of CFS and FM patients and work hard to raise awareness, funding and support for these debilitating diseases. Such organizations include ProHealth’s ImmuneSupport.com (which I have a link to on my Blog).

The CFIDS Association of America, The National Fibromyalgia Partnership, The National Fibromyalgia Association, The National CFIDS Association, and The National Fibromyalgia Research Association, among others.

Establishing a support system is crucial to the overall well-being of fibromyalgia and CFS patients. This can start by sharing your story on my Blog, I promise to answer your questions and I do understand what you are going through because I suffer from these diseases.

I will lead you to sources or give you information on how to educate your immediate family and friends.  They will need to be educated about the patients debilitating symptoms and significant limitations.  I want to start a support group in my area (Austin, TX) and also want to help support others via my Blog or just email me personally.

I hope and pray that is post has helped someone today. Praying for a pain free day.

Fibro Viv

Where else to go for Information and Support

The Internet is a great tool for conducting research and gathering information about your illness. A search from any one of the many Internet search engines will lead you to a number of organizations that represent the needs and concerns of CFS and FM patients and work hard to raise awareness, funding and support for these debilitating diseases. Such organizations include ProHealth’s ImmuneSupport.com (which I have a link to on my blog),

The CFIDS Association of America, The National Fibromyalgia Partnership, The National Fibromyalgia Association, The National CFIDS Association, and The National Fibromyalgia Research Association, among others.

Establishing a support system is crucial to the overall well-being of fibromyalgia and CFS patients. This can start by sharing your story on my blog, I promise to answer your questions and I do understand what you are going through because I suffer from these diseases.

I will lead you to sources or give you information on how to educate your immediate family and friends. They will need to be educated about the patients debilitating symptoms and significant limitations. I want to start a support group in my area (Austin, TX) and also want to help support others via my blog or just email me personally.

I hope and pray that is post has helped someone today. Praying for a pain free day.

Fibro Viv

Target Heart Range Monitoring Aerobic Exercise

There are ways to monitor aerobic exercise intensity by taking your heart rate at different times while you exercise (usually before, during and after you exercise). You can determine if your heart rate falls within your target heart rate range.

To calculate your personal target heart rate range is accomplished by taking a percentage of your maximum heart rate based on your fitness level.

CALCULATING YOUR TARGET HEART RATE

A. Locate your pulse two different ways:

1. Radial - thumb on the side of the wrist, palm up
2. Carotid - groove of the neck

B. Count 10 seconds and multiple by 6 OR count 6 seconds and multiply by 6.

220 - Age = N
Minimum Heart Rate
N x .60

Average Heart Rate
N x .70

Maximum
Heart Rate
N x .80

TIP: If you are able to talk, then you are O.K. When it is difficult to talk, you are moving too much.

Training Considerations and Exercise Modifications

a) Strengthening programs can improve or prolong function in working muscles, especially if your muscles are weak from lack of use.

b) Use only moderate intensity exercise and prevent over fatiguing muscles. Do not exercise to the point of exhaustion.

c) Depending on your present capability and other demands in your life, your exercise and physical activity will vary greatly. Try to be consistent.

Also keep in mind you have to take care of your feet. I have linked this post to the links listed on the right hand side of my posts named “FOOT HEALTH”.

I pray and hope that this post has helped someone today. Have a pain free day.

Fibro Viv