Allow yourself to share your experience with this invisible illness and help yourself and others too.
Times before were so different, it has all sunk in, I feel different in many ways. Every day is a better day, yet I long for the past and at the same time look forward to today and tomorrow. It was difficult to move on, after all life does go on. There is no going back to that person I once was. The key was to hang onto my faith and to remember my blessings. You see the journey is not over, and it is just another chapter in my life.
Please share your thoughts.
I shared my thoughts and feelings and received some responses via my email. It is interesting how some people feel better knowing there is someone out there that feels as I do. There are others who try to reach out and help and those who wish for this time to pass for me. Isn’t life interesting and of course people are always interesting?
I am sorry I missed posting yesterday, I was ready to do so, however my blog was not cooperating with me! Or perhaps my brain was all fogged up and unable to function.
I woke up this morning and opened my mind and eyes and my first thoughts were “Thank you God for allowing me to be alive.” My dear husband quickly went to the kitchen to prepare a cup of hot chocolate for me and heat up my rice pad for my aching body. It seems each morning as I first awake with no feeling throughout my body, all I can do is take my medication and supplement. The whole ritual is a way of awaking each morning and my body temperature is very low. I kiss my husband, drink my cup of chocolate and get back into my bed with my pad to warm up. You see, my body has started to awaken and feel pain and cool all over. It takes about an hour for my body to recover. When I start to recover, I slowly force myself to stretch while in bed, then I stand up and walk around and try some yoga moves. I do not know exactly when, but my body starts to feel better. You see I can deal with the pain simply by stretching, yoga, tools and tips I have shared with all of you. The fatigue is more difficult to deal with, but I have found ways to deal with the fatigue. As I have always stated “pain is easier than fatigue.” I can now get on with my day.
I felt better today. Why? Because I shared how I felt with my family, perhaps with some remorse, but somehow the thoughts and feelings I had, seemed to have disappeared. What do you think about that? Some people do not like to share because they believe they are showing weakness. I believe we are being honest with ourselves and our family. It is all a part of healing. What do you think? Please share your feelings by posting. I will continue to accept emails from anyone that does not feel comfortable posting. However, I want you to know that sharing is healing.
I pray and hope you have a pain and fatigue free day!
Fibro Viv
I felt weak yesterday when my husband came home. I told my family I felt overwhelmed and needed to spend some time by myself away from home. My Mother has never and would never say those words to her family. I cannot be as perfect as she is, I believe she is a saint. I strive to be as kind, loving and caring as she is. She is one of the strongest women I have ever known. Anyway, back to my weak moment in time, I cried and apologized for feeling this way. Of course they understood how I felt, were supportive and gave me my space for the evening. How blessed am I?
All I could think about afterwards was my mother, brother and sister’s. They are all strong individuals that deal with more than I ever have. I am blessed to still have a husband alive and by my side. They are not so lucky. So, how could I have felt that way? Why did I speak those words? I had started to focus on getting organized and actually made some progress. What happened? What caused this weakness? Was it the presence of my supportive husband? I am sharing this with all of you because I believe our illness causes us to feel this way. What do you think?
I pray and hope everyone has a pain and fatigue free day.
Fibro Viv
Hello Everyone,
I thought I would start a small series of thoughts and perhaps moments in my life. Some comments will be random and hopefully gains your interest. Here goes . . .
I always thought of myself as a strong individual able to handle anything that came my way. I have been a shoulder to friends and strangers have had leadership jobs most of my life until I first started feeling all sorts of symptoms. I simply do not like the thought of feeling weak. Have any of you felt weak for any reason? We all have moments we don’t want to think about fear, weakness, sadness, is anyone willing to share? I’ll post tomorrow.
I hope and pray you have a pain and fatigue free day.
Fibro Viv
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